Meet the experts
Learn more about the global experts of HEMOSTASIS CONNECT, an initiative of COR2ED.
Prof. Jerzy Windyga
Haematologist
Institute of Hematology and Transfusion Medicine
Poland
Prof. Jerzy Windyga
Haematologist
Institute of Hematology and Transfusion Medicine
Poland
Institute of Haematology and Transfusion Medicine, Warsaw, Poland
Jerzy Windyga is the Head of the Department of Disorders of Haemostasis and Internal Medicine in the Institute of Haematology and Transfusion Medicine, Warsaw, Poland.
Prof. Windyga obtained his medical degree from Warsaw Medical University. He later received his doctoral degree at the Institute of Haematology and Blood Transfusion in Warsaw, where he also completed his medical specialisations in internal medicine, haematology, and laboratory haematology.
He has been a member of the Board of Directors of the WFH (2014-2018) and the Executive Board of the Polish Society of Haematology and Transfusion Medicine (2011-2019). He was the 2012–2016 chair of the Haemophilia Twinning Committee of the WFH. Dr Windyga has also been a member of the EUHANET Steering Committee. In 2013 Dr Windyga was the president of the 6th Congress of the European Association for Haemophilia and Allied Disorders (EAHAD).
Since 2003, Professor Windyga has been a member of the Medical Board of the Polish Haemophilia Society, where he advises on recommendations for haemophilia management. In 2019 he has been appointed the Chair of the Advisory Board of the National Program of Haemophilia and Allied Disorders in Poland 2019-2023. He has authored and co-authored over 400 papers published both in Polish and international medical journals. His current research is focused on management of haemophilia and other inherited bleeding disorders, immune thrombocytopenia, thrombotic microangiopathies, porphyria as well as management of venous thromboembolism with a focus on thrombophilia and rare venous thromboses.
Prof. Victor Jiménez-Yuste
Haematologist
La Paz University Hospital
Spain
Prof. Victor Jiménez-Yuste
Haematologist
La Paz University Hospital
Spain
La Paz University Hospital, Madrid, Spain
Víctor Jiménez-Yuste is Associate Professor of Medicine at the Universidad Autónoma de Madrid and Head of the Haematology Department at the Hospital Universitario La Paz (Madrid, Spain). After his degree in Medicine at the University of Valladolid, he specialised in haematology at the Hospital Universitario La Paz. He was awarded his PhD by the Autónoma University of Madrid where he completed his thesis studying haemophilia and HIV infection.
Professor Jiménez-Yuste is a member of the executive committee of the Spanish Society of Haematology and Haemotherapy. His lines of research include the treatment of hereditary coagulation disorders, ITP, and acquired haemophilia. He has published more than 200 articles in different journals on these topics.
Dr. Maria Elisa Mancuso
Haematologist
Center of Thrombosis and Hemorrhagic Diseases of Humanitas Clinical and Research Center (IRCCS)
Italy
Dr. Maria Elisa Mancuso
Haematologist
Center of Thrombosis and Hemorrhagic Diseases of Humanitas Clinical and Research Center (IRCCS)
Italy
Maria Elisa Mancuso MD, PhD is a Senior Consultant in Haematology with a special interest in haemostasis. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology.
She worked as a Clinical Assistant at the Angelo Bianchi Bonomi Hemophilia and Thrombosis Center in Milan (Italy) from 2008 to 2020. Since May 2020 she has been Senior Consultant at the Center for Thrombosis and Haemorrhagic Diseases at IRCCS Humanitas Research Center in Rozzano, Milan (Italy).
Dr Mancuso is involved in clinical research and has published several original articles in peer-reviewed journals such as The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia.
She is a member of the Editorial Board of the Journal of Thrombosis and Haemostasis and is a reviewer for several peer-reviewed journals in the field of Thrombosis and Haemostasis and is a member of several national and international scientific societies (AICE, SISET, ISTH, WFH, ASH, EAHAD). She has acted as Co-Chair of the Scientific and Standardization Subcommittee of ISTH (SSC-ISTH) on FVIII, FIX and rare bleeding disorders.
Dr Mancuso has been involved as co-investigator in several clinical trials, and takes care of both children and adults with haemophilia with a specific scientific interest in inhibitors, chronic hepatitis C, optimisation of prophylaxis and novel therapies.
Prof. Ana Boban
Haematologist
University Hospital Centre Zagreb
Croatia
Prof. Ana Boban
Haematologist
University Hospital Centre Zagreb
Croatia
Dr Ana Boban is Head of Haemophilia Centre at the University Hospital Centre Zagreb and Associate Professor of Internal Medicine at the School of Medicine of the University of Zagreb, Croatia. She has specialist degrees in Internal Medicine and Haematology.
Dr Boban’s clinical work is in the field of benign haematology with the focus on bleeding disorders and thrombosis.
Dr Boban is a member of national and international scientific and medical societies in the field of haemostasis and thrombosis and is currently serving as Executive Committee member of EAHAD.
Dr Boban’s research interests include clinical haemophilia, carriers of haemophilia, von Willebrand disease, anticoagulant treatments and ITP.
Prof. Angelika Batorova
Haematologist
University Hospital Bratislava
Slovakia
Prof. Angelika Batorova
Haematologist
University Hospital Bratislava
Slovakia
Angelika Batorova is a Medical Director of the National Hemophilia Centre and Hemostasis and Thrombosis Unit of the Department of Hematology and Transfusion Medicine, University Hospital, Bratislava. Dr Batorova received her medication education from Comenius University, Bratislava, where she specialised in Internal Medicine, Hematology and Transfusion Medicine. In 1992 she obtained the PhD and in 2004 the position of Associate Professor at the Medical School of Comenius University and at the Postgraduate Medical School, both in Bratislava. The fellowship and visiting appointments included the National Hemophilia Centre in Tel Aviv, the New York Blood Centre, and the Hemophilia Comprehensive Care Centers in New York.
Dr Batorova’s fields of interests is the optimisation of hemophilia treatment, including the treatment of inhibitors, management of surgery, continuous infusion of coagulation factors as well as the comprehensive care for congenital factor VII deficiency.
Dr Batorova has worked as a member of the Executive Committee and the Medical Advisory Board of the World Federation of Hemophilia 2006 – 2010 and currently she is a member of the Data and Demographic Committee of the WFH and the Medical Advisory Group of the European Haemophilia Consortium.
Prof. Kaan Kavakli
Paediatric Haematologist
Ege University
Turkey
Prof. Kaan Kavakli
Paediatric Haematologist
Ege University
Turkey
Kaan Kavakli, MD, is chair of the Department of Paediatrics and a professor of paediatrics and paediatric haematology at the Medical School of Ege University in Izmir, Turkey, where he previously was chair of the Department of Paediatric Haematology. Additionally, he is a paediatric haematologist in the Department of Paediatrics at Ege University Hospital and the director of the Ege Haemophilia Centre and the Ege Haemophilia Association.
Dr Kavakli received his medical degree and training in paediatrics at Ege University Medical School.
His special interests are haemostasis, thrombosis, and the care of patients with haemophilia. His recent work has included identification of certain mutations in Turkish haemophilia patients with inhibitors, radioisotope synovectomy for haemophilic arthropathy, the role of circumcision in boys with haemophilia, and treatment options for patients with inhibitors. Dr Kavakli has been a principal investigator for international clinical trials in haemophilia.
Dr Kavakli is president of the Turkish Hemostasis and Thrombosis Association and the Hemophilia Federation of Turkey, which comprises 11 regional haemophilia associations. He is a member of many international societies and serves on the editorial boards and as a reviewer for several haematology journals.
Dr Kavakli has published more than 100 papers in such journals as Blood, The New England Journal of Medicine, and Haemophilia, etc.
Prof. Irena Preloznik Zupan
Haematologist
University Medical Centre Ljubliana
Slovenia
Prof. Irena Preloznik Zupan
Haematologist
University Medical Centre Ljubliana
Slovenia
Dr. Irena Preloznik Zupan completed Internal Medicine and Haematology specialisations and is a dedicated haematologist at the UMC Ljubljana, Slovenia. She is Head of the Outpatient Department, Day Care Hospital and Haemophilia Treatment Centre for adult patients at the Haematology Clinic, UMC Ljubljana, Slovenia. Since 1999, Prof Zupan has been giving regular lectures and tutorials in internal medicine and clinical haematology for Medicine and Pharmacy Faculty students at the UMC Ljubljana, Slovenia and is a mentor for PhD and MSc students.
In recent years, she has been working intensively on the development of a day care hospital in the field of haematology. Together with the patient society she started the Slovenian Comprehensive Care Programme for Haemato-oncology Patients with a psychologist, clinical dietitian, physiotherapist, and physician. She is investigating the pathways and programmes that haematology patients need for a better quality of life.
She is a member of the EHA, ADVANCE group, MPN&MPNr and is/was PI in many clinical trials.
Her main clinical and research activity is focussed on haemostatic disorders, non-malignant haematology and myeloproliferative neoplasms.
Assoc. Prof. Alison Dougall
Dental Consultant
Dublin Dental Hospital and Trinity College Dublin
Republic of Ireland
Assoc. Prof. Alison Dougall
Dental Consultant
Dublin Dental Hospital and Trinity College Dublin
Republic of Ireland
Dr Alison Dougall is the Dental Consultant in Medically Complex Patients at Dublin Dental Hospital and Director of the Doctorate Programme in Special Care Dentistry at Trinity College Dublin.
She educates dentists at undergraduate postgraduate and specialist level has led oral health services for people with a wide range of rare bleeding disorders at the National Coagulation Centre in Dublin for 15 years and has published a significant number of peer reviewed research papers in this area.
She is the former chair of the dental committee of the World Federation of Haemophilia and is on the Medical Advisory Board of the European Haemophilia Consortium. She is currently the President of the International Society for Disability and Oral Health in 2017 she was voted the HMI Health Leader of Ireland for her work developing integrated oral health care pathways for people with inherited bleeding disorders.
Assoc. Prof. Michael A Mazzeffi
Cardiothoracic Anesthesiologist and Intensive Care Physician
George Washington University School of Medicine
United States (US)
Assoc. Prof. Michael A Mazzeffi
Cardiothoracic Anesthesiologist and Intensive Care Physician
George Washington University School of Medicine
United States (US)
Dr. Mazzeffi is a cardiothoracic anesthesiologist and intensive care physician. He is currently Executive Vice Chair and Director of Cardiac Intensive Care at George Washington University School of Medicine in Washington, DC. He is an active clinical researcher with an interest in hemostasis, viscoelastic coagulation testing, extracorporeal membrane oxygenation, and acquired Von Willebrand Syndrome in patients on mechanical circulatory support. He is an active teacher and mentor for medical students, anesthesiology residents and fellows.
Dr. Sarah O’Brien
Paediatric Haematologist
Nationwide Children's Hospital
United States (US)
Dr. Sarah O’Brien
Paediatric Haematologist
Nationwide Children's Hospital
United States (US)
Dr. Sarah O’Brien is Associate Professor of Pediatrics at The Ohio State University College of Medicine. She leads a multi-disciplinary young women’s hematology clinic at Nationwide Children’s Hospital. Her clinical and research interests include the evaluation and diagnosis of mild bleeding disorders and the intersections between hematology and women’s health.
Prof. Rezan Abdul-Kadir
Obstetrician & Gynaecologist
Katharine Dormandy Haemophilia Centre at the Royal Free Hosptial
United Kingdom (UK)
Prof. Rezan Abdul-Kadir
Obstetrician & Gynaecologist
Katharine Dormandy Haemophilia Centre at the Royal Free Hosptial
United Kingdom (UK)
Prof. Rezan Abdul-Kadir is a consultant Obstetrician and Gynaecologist, specialised in haemostatic disorders in women. She trained in obstetrics and gynaecology in London and accomplished an MD degree from University of London for her thesis on inherited bleeding disorders in women. She started the first Joint multi-disciplinary clinic for women with bleeding disorders in 2002 and has been leading the service at Katharine Dormandy Haemophilia Centre at the Royal Free hospital. The clinic is internationally renowned for its model of care, its research output in the field and as an international training centre.
Her extensive research publications have provided evidence for the prevalence and variety of women’s bleeding disorders and their management, which have established an entire new subspecialty for provision of comprehensive care to this large group of women. She led several national and international guidelines and co-authored a book entitled “Inherited Bleeding Disorders in Women” first edition published in 2009; second edition in 2019. She is currently leading several multi-disciplinary research projects collaborating with international academic teams and scientists in the field of bleeding disorders in women. She has given presentations at numerous international congresses and has authored over 200 peer-reviewed publications.
In addition to research and setting the service model, Prof. Rezan Abdul-Kadir has been in the forefront of advocacy for women’s issues in families with bleeding disorders. She led the establishment of “Women Bleed Too project” with the UK Haemophilia society in 2005; and has been chair /member of its medical advisory board since then. This project has become a model for increasing awareness and promoting wellbeing of women and has been replicated in the USA, Canada and in most of Europe. She also plays a leading role in international medical societies, patients’ organisations and NGOs advocating women’s health issues in thrombosis and haemostasis.
She is a co-founder and chair/co-chair of committees on women’s health for International Society of Thrombosis and Hemostasis, World Federation of Hemophilia and European Association for Haemophilia and Allied Disorders.
Debra Pollard
Lead Nurse Specialist
Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free Hospital
United Kingdom (UK)
Debra Pollard
Lead Nurse Specialist
Katharine Dormandy Haemophilia and Thrombosis Centre, Royal Free Hospital
United Kingdom (UK)
Debra Pollard is Lead Nurse Specialist, Advanced Nurse Practitioner at Katharine Dormandy
Haemophilia and Thrombosis Centre, Royal Free Hospital, London, UK.
Debra is also Director of Education at Haemnet, a member of the European Haemophilia
Consortium’s Medical and Scientific Advisory Group, the UK’s Haemophilia Society as well a member of the Women and Bleeding Disorders Working Group of the EAHAD.
Dr. Roseline d’Oiron
Haematologist
Reference Centre for Haemophilia and Rare Congenital Bleeding Disorders, Bicêtre Hospital AP-HP and University of Paris-Saclay, Le Kremlin–Bicêtre
France
Dr. Roseline d’Oiron
Haematologist
Reference Centre for Haemophilia and Rare Congenital Bleeding Disorders, Bicêtre Hospital AP-HP and University of Paris-Saclay, Le Kremlin–Bicêtre
France
Roseline d’Oiron is a Clinician Investigator and Associate Director at the the Reference
Centre for Haemophilia and Rare Congenital Bleeding Disorders at Bicêtre Hospital AP-HP and University of Paris-Saclay, France. She is also responsible for Specialist training for the master’s degree in haematology at University Paris VII.
She is the current elected president of the Steering Committee of the FranceCoag Network, a
national registry of bleeding disorders, a member of the European Haemophilia
Consortium’s Medical and Scientific Advisory Group and a member of the Women and Bleeding
Disorders Working Group of the EAHAD.
Dr. Vickie McDonald
Haematologist
Royal London Hospital and Queen Mary University of London
United Kingdom (UK)
Dr. Vickie McDonald
Haematologist
Royal London Hospital and Queen Mary University of London
United Kingdom (UK)
Dr Vickie McDonald is a consultant haematologist at the Royal London Hospital, London, UK. Her main interests are disorders of coagulation, including ITP. She looks after patients with inherited and acquired disorders of clotting and platelets and runs specialist clinics in ITP. She is an honorary senior lecturer at Queen Mary University of London and is the national chief investigator for the UK ITP registry in addition to the PI and CI for several trials in ITP, both early and late phase studies.
Dr. Michelle Lavin
Haematologist
RCSI and National Coagulation Centre, St. James’ Hospital
Republic of Ireland
Dr. Michelle Lavin
Haematologist
RCSI and National Coagulation Centre, St. James’ Hospital
Republic of Ireland
Dr. Michelle Lavin is a Consultant Haematologist in the National Coagulation Centre in St. James’ Hospital, Ireland and a Principal Investigator in the Irish Centre for Vascular Biology in RCSI. She serves as a Co-Chair on the Von Willebrand Factor Scientific Subcommittee of the International Society on Thrombosis and Haemostasis (ISTH) and on the European Association for Haemophilia and Allied Disorders (EAHAD) Women and Bleeding Disorders Committee. Dr. Lavin’s research focuses on improving diagnosis and care for women with bleeding disorders and the management of Von Willebrand Disease.
Prof. Cedric Hermans
Haematologist
Cliniques Universitaires Saint-Luc, Catholic University of Louvain
Belgium
Prof. Cedric Hermans
Haematologist
Cliniques Universitaires Saint-Luc, Catholic University of Louvain
Belgium
Cedric Hermans currently heads the Division of Haematology, the Haemostasis and Thrombosis Unit as well as the Haemophilia Centre of the Saint-Luc University Hospital in Brussels, Belgium. He was appointed Associate Professor at the Medical School of the Catholic University of Louvain in 2003, Full Professor in 2012 and Vice-Dean in 2015.
Professor Hermans has (co)-authored more than 275 original articles in international journals (H-Index:41) and is a member of several scientific societies and international advisory boards and collaborative research projects.
He was president of EAHAD and is currently member of the Board of Directors of the World Federation of Haemophilia and the Editor-in-Chief of the Haemophilia Journal.
His main research interests lie in the area of haemostasis and thrombosis, especially clinical studies on the treatment modalities and the wide spectrum of complications of haemophilia in both developed and developing countries, as well as new anticoagulants and the management of thrombosis.
Dr. Katharina Holstein
Haematologist
Univeristy Medical Center Hamburg-Eppendorf (UKE)
Germany
Dr. Katharina Holstein
Haematologist
Univeristy Medical Center Hamburg-Eppendorf (UKE)
Germany
Katharina Holstein is currently working at the Haemophilia and Thrombosis Centre at the University Medical Center Hamburg-Eppendorf, Hamburg, Germany, since 2004. After receiving her medical degree at the University of Hamburg in 1992, she worked in the department of Internal Medicine at the General Hospital Eilbek Hamburg, Germany, and in the department of Haematology and Oncology at the University Hospital Hamburg-Eppendorf from 1995. Her specialties include internal medicine, haematology, oncology and haemostaseology with a special focus on haemophilia.
Dr Holstein’s field of interest is improvement of care for people with haemophilia. She has taken part in several clinical trials and studies and has focused mainly on haemophilia treatment since 2004. She is a reviewer for several haematology journals and has published several articles in the field of haemophilia. Her special research interests are joint and bone health, pain management, bleeding phenotype and treatment of inhibitors in patients with haemophilia.
Assoc. Prof. Robert Klamroth
Haematologist
Vivantes Hospital Friedrichshain
Germany
Assoc. Prof. Robert Klamroth
Haematologist
Vivantes Hospital Friedrichshain
Germany
Dr Robert Klamroth received his medical degree in 1994, and went on to gain his PhD in 1996 at Free University, Berlin, Germany. Here he took the position of Academic Assistant of the Clinic for Internal Medicine and Complementary Medicine, University Medical Centre, and then became Assisting Consultant / Senior Consultant of the Department for Coagulation Disorders / Haemophilia Treatment Centre of the Hospital in Friedrichshain, Berlin, a position which he held until 2001 when he received his specialisation in internal medicine.
Since 2001, Dr Klamroth has been Assistant Medical Director at the Clinic for Internal Medicine, Angiology and Coagulation Disorders, and Director of the Haemophilia Treatment Centre and the Department of Coagulation Disorders at the Vivantes Hospital in Friedrichshain, Berlin. Since 2014 he has been head of the Department for Internal Medicine and Vascular medicine at this hospital. Since 2017 he has been Associate Professor of Coagulation Disorders at the University of Bonn.
Since 1997, Dr Klamroth has published more than 100 manuscripts in the field of haemophilia and coagulation disorders, and made many academic contributions on coagulation disorders, as well as participating in clinical studies in this field. His major research interest is haemophilia in adults.
Dr Klamroth is the vice president of for the European Association of Haemophilia and Allied Disorders (EAHAD) and holds membership of various national and international societies in the field of angiology, thrombosis and haemostasis. He also serves as Vice President at the German Society of Thrombosis and Haemostasis (GTH).
Prof. Christoph Male
Paediatric Haematologist
Medical University of Vienna
Austria
Prof. Christoph Male
Paediatric Haematologist
Medical University of Vienna
Austria
Christoph Male is consultant and associate professor at the Department of Paediatrics, Medical University of Vienna (MUW), Austria, where he heads the Paediatric Haemostasis & Thrombosis unit.
He trained in General Medicine and Paediatrics, with sub-speciality degrees in Paediatric Cardiology and Paediatric Intensive Care. He was clinical and research fellow with the Paediatric Thrombophilia Programme at the Hospital for Sick Children, Toronto, and McMaster University, Hamilton, Ontario, Canada, where he also earned a M.Sc. degree in Health Research Methodology (1998-2000).
Dr. Male’s scientific interest is in paediatric haemostasis & thrombosis, anticoagulation, clinical pharmacology, drug evaluation and clinical trials methodology in children. He has more 20 years of experience in clinical research and is actively involved in several academic or industry-sponsored clinical trials in children.
Dr. Male currently acts as co-chair of the Paediatric Scientific and Standardization Subcommittee of the International Society of Thrombosis & Haemostasis (ISTH), chair of the Scientific Board of the Austrian Haemophilia Society, and past board member of the German-Austrian-Swiss Society of Thrombosis and Haemostasis Research (GTH). He served as Austrian delegate in the Paediatric Committee (PDCO) at the European Medicines Agency from 2007-2016, is a member of the Scientific Board of the Austrian Medicines Agency and paediatric member of the ethics committee of the MUW
Prof. Gili Kenet
Haematologist
National Hemophilia Center and Thrombosis Institute in Tel Hashomer and Amalia Biron Thrombosis Research Institute of Tel Aviv University
Israel
Prof. Gili Kenet
Haematologist
National Hemophilia Center and Thrombosis Institute in Tel Hashomer and Amalia Biron Thrombosis Research Institute of Tel Aviv University
Israel
Director of the Israel National Haemophilia Centre and Thrombosis Institute, Sheba Medical Centre and Director of Amalia Biron Research Institute of Thrombosis and Haemostasis, Tel Aviv University (located at the Sheba Medical Centre).
Gili Kenet is a paediatric haematologist, Professor and former Chair of the Haematology Department at the Sackler Medical School, Tel Aviv University.
Professor Kenet received her Medical Degree from the Hebrew University in Jerusalem. Her research projects have been focused on neonatal haemostasis, childhood stroke and paediatric thrombophilia, as well as the research of new therapy modes applied for people with haemophilia and severe bleeding disorders. She was awarded national grants for paediatric haematology and cancer research, study of rFVIIa mode of action, epidemiology of inhibitor evolution in haemophilia and for personalised tailoring of bypass agent therapy, and applying global haemostasis assays. Prof. Kenet pioneered in gene therapy clinical trials in Israel and novel non replacement drugs in haemophilia.
Professor Kenet is the author of over 200 peer reviewed scientific publications, review articles and book chapters. An active member of the World Federation of Haemophilia, Israeli Society of Paediatric Haematology and Oncology, and the American Society of Haematology, an active reviewer for high impact thrombosis journals and an editorial board member of the Haemophilia journal. Former Chairperson of the Israeli Society of Thrombosis and Haemostasis and Chairperson of the Paediatric and Peri-natal Haemostasis Scientific Subcommittee of ISTH. Currently co-chairs the FVIII/FIX and rare bleeding disorders of the SSC of ISTH.
Prof. Pål Andrè Holme
Haematologist
Oslo University Hospital
Norway
Prof. Pål Andrè Holme
Haematologist
Oslo University Hospital
Norway
Pål Andrè Holme is Professor of Haematology and Senior Haematologist at the Department of Haematology and Institute of Clinical Medicine, Oslo University and Oslo University Hospital, Rikshospitalet, Norway. He graduated from the Medical School at the University of Oslo in 1993 and was a research fellow at the Institute for Internal Medicine, University of Oslo, where he earned a PhD in 1996 after studies on platelet activation and platelet-derived-microparticle formation. He is a specialist in internal medicine and haematology.
Prof. Holme has been responsible for the treatment of adult patients with haemophilia and bleeding related disorders in Norway since 2006. He leads a research group at Institute of Clinical Medicine and participates in several clinical research groups and has for a long time been an active investigator in studies on bleeding related disorders and platelets, and has authored many papers published in peer-reviewed journals and textbook chapters on these subjects.
Prof. Karin Fijnvandraat
Paediatric Haematologist
University of Amsterdam
Netherlands
Prof. Karin Fijnvandraat
Paediatric Haematologist
University of Amsterdam
Netherlands
Karinfijnvandraat is Professor of Paediatric Haematology at the University of Amsterdam and Director of the Haemophilia Treatment Centre Amsterdam. She trained in paediatrics and specialised in paediatric haematology at the University of Amsterdam.
Her clinical focus is on haemophilia, allied bleeding disorders and sickle cell disease. After a fellowship in clinical epidemiology, her haemophilia research focused on non-severe haemophilia.
In 2007 she initiated the international INSIGHT Consortium to enhance collaboration on non-severe haemophilia research among 34 haemophilia treatment centres in 10 European countries and Australia. Furthermore, she contributed to many multicentre studies in haemophilia, von Willebrand disease and sickle cell disease.
Prof. Jan Astermark
Haematologist
Lund University and Skån University Hospital
Sweden
Prof. Jan Astermark
Haematologist
Lund University and Skån University Hospital
Sweden
Lund University and Skåne University Hospital in Malmö, Sweden.
Jan Astermark is Professor in Clinical Coagulation Medicine at Lund University, Senior Consultant and Director of the Center for Thrombosis and Hemostasis in Malmö and Assistant Head of the Department of Translational Medicine in Malmö/Lund, Sweden.
He is a specialist in haematology, coagulation disorders and internal medicine. He is a reviewer for haematology journals, and has published a number of original articles, review articles and book chapters in the field of haemophilia and coagulation disorders.
Prof. Jan Blatný
Paediatric Haematologist
Children's University Hospital Brno
Czech Republic
Prof. Jan Blatný
Paediatric Haematologist
Children's University Hospital Brno
Czech Republic
Jan Blatný, MD, PhD, is Consultant Haematologist at the Department of Paediatric Haematology, Centre for Thrombosis and Haemostasis, Director of the Haemophilia Comprehensive Care Centre and Medical Director for Paediatrics of University Hospital in Brno, Czech Republic. He is also an Associate Professor of Paediatrics at Masaryk University in Brno, Czech Republic.
His research interests encompass paediatric haematology, thrombosis and haemostasis, and life-threatening bleeding. He is a member of the Working Party on population PK of the ISTH SSC Subcommittee on Factor VIII and IX and Rare Bleeding Disorders. In addition to ISTH, Dr Blatný is a member of numerous national and international haematology organizations. He serves on the steering committee and is a paediatric coordinator of the Czech National Haemophilia Programme, member of Executive Committee of EAHAD, member of MAG (Medical advisory group) of EHC, a reviewer for several haematology journals, and is on the editorial board for an official journal of Czech Haematology society.
From November 2020 – April 2021 he served as a Minister of Health of The Czech Republic.
Dr Blatný’s publication credits are 9 book chapters and over 80 articles published in peer-reviewed journals.
Prof. Niamh O’Connell
Haematologist
National Coagulation Centre, St James's Hospital
Republic of Ireland
Prof. Niamh O’Connell
Haematologist
National Coagulation Centre, St James's Hospital
Republic of Ireland
Prof Niamh O’Connell is a Consultant Haematologist at the National Coagulation Centre (NCC), St. James’s Hospital, Dublin, Ireland and has taken on the role of National Haemophilia Director since early 2018.
The NCC is the lead comprehensive care centre for adults in Ireland and provides a hub of clinical services, research, training and education on a national basis. The NCC, in partnership with the Irish Haemophilia Society, is committed to delivering high quality and safe healthcare and to promoting healthy and successful living for people and their families living with haemophilia and other coagulation disorders.
Research interests include clinical trials in novel therapies for haemophilia, clinical outcomes in haemophilia and application of information technology solutions in the management of haemophilia.
Prof. Christoph Königs
Paediatric Haematologist
University Hospital Frankfurt
Germany
Prof. Christoph Königs
Paediatric Haematologist
University Hospital Frankfurt
Germany
Christoph Königs has been based at the Paediatric Haemophilia Centre, University Hospital Frankfurt, Germany since 2002. He received his degree in science from Monash University, Melbourne, Australia in 1998 and his medical degree from Goethe University Frankfurt, Germany in 2002. For both his MD and PhD thesis, Christoph isolated ligands to clinically relevant structures of protein receptors and RNA.
The main clinical and scientific interest of his research team is the understanding and modification of the immune response to coagulations factors. His main clinical focus is developing and improving therapies for children and adolescents with coagulation disorders with a focus on patient education and shared decision making.
Christoph specialises in paediatrics and adolescent medicine and also in haemostasis.
He is a member of several national and international scientific societies and committees. He co-chairs the Standing Committee Haemophilia of the Society for Thrombosis and Haemostasis (GTH), the National Registry on PUPs with Newly Diagnosed Haemophilias in Germany “GEPHARD” and the Scientific Advisory Council of PedNet. Christoph works closely with German patient organizations i.e. as a deputy chair of the medical advisory board.
Dr. Rosa Sonja Alesci
Haematologist and Health Economist
IMD Blood Coagulation Centre
Germany
Dr. Rosa Sonja Alesci
Haematologist and Health Economist
IMD Blood Coagulation Centre
Germany
Rosa Sonja Alesci, MD, health economist, underwent medical training at the Goethe University Hospital Frankfurt, Germany. She started her internal medicine training at Mannheim University Hospital and received her MD at the Ruprecht-Karls-University of Heidelberg.
She is currently the director of the IMD blood coagulation centre (Bad Homburg/Frankfurt/Wiesbaden). She deals with one of the biggest cohort of patients with VWD in Germany.
She was awarded with the Achieve Program in 2010 and wass the winner of the Hermansky lecture regarding treatment of the VWD also in 2010. Since 2007, she has led and/or developed several investigational clinical trials for patients with bleeding disorders either as study chair, principal investigator or site principal investigator.
She is an active member on the „Arbeitskreis Hämostaseologie“ of the German Society of Hematology and Oncology (DGHO) and member of the mecidal advisory board of the „German alliance for security of Hemophilia“. Further, she works unsalaried together with patient organisations.
Her activity has been mainly focused on several aspects of clinical research in von Willebrand disease, rare bleeding disorders and ITP. In particular, she is an expert in the question of anticoagulation in patients with haemorrhagic diathesis and in treatment of pregnancy in those patients.
Dr. Karin van Galen
Haematologist
Department Van Creveldkliniek of the UMC Utrecht
Netherlands
Dr. Karin van Galen
Haematologist
Department Van Creveldkliniek of the UMC Utrecht
Netherlands
After graduating in medicine, Dr Karin van Galen was trained in the field of internal medicine. She completed her specialisation as a hematologist in 2011 after which she was appointed as Consultant Hematologist at the Department Van Creveldkliniek of the UMC Utrecht, the Netherlands. Here she has expanded her clinical experience in the treatment of patients with benign hematological conditions.
In addition to patient care Karin van Galen finished a PhD project on joint bleeding in Von Willebrand disease in November 2017 and currently participates in several (inter)national studies on congenital bleeding disorders. Currently she runs a post-doc research project on pregnancy in inherited bleeding disorders and (co)supervises two PhD students.
Dr. Gianluigi Pasta
Orthopedic Consultant
Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di Pavia
Italy
Dr. Gianluigi Pasta
Orthopedic Consultant
Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di Pavia
Italy
Dr. Gianluigi Pasta, from 2006 to 2017, worked as the orthopaedic consultant of Angelo Bianchi Bonomi Hemophilia Centre of Milan. He is now an orthopaedic consultant at the Hemophilia Centre at Fondazione IRCCS Policlinico San Matteo di Pavia, providing clinical services including musculoskeletal assessment and non-surgical and surgical treatment.
Dr. Pasta has been an active member of the MSK Committee of the WFH for many years and he is the current Chair of the Committee.
He is the author of several published papers and book chapters covering many aspects of musculoskeletal problems of haemophilia (non-surgical and surgical).
Dr Pasta is an active member of Italian Hemophilia Centres Association and is the coordinator of the MSK Group.
Dr. Azusa Nagao
Haematologist
Ogikubo Hospital
Japan
Dr. Azusa Nagao
Haematologist
Ogikubo Hospital
Japan
Azusa Nagao, M.D., M.Sc., serves as a hematologist at Ogikubo hospital, Tokyo, Japan that is the biggest hemophilia treatment center.
Dr. Nagao’s clinical research is focused on problems of women and girls bleeding disorders, ageing problems of hemophilia patients, and musculoskeletal ultrasound systems.
Even though Dr. Nagao is a young investigator, she has authored and co-authored more than 20 scientific publications, been a speaker at many national and international meetings and congresses.
Dr. Jonathan C. Roberts
Paediatric and Adult Haematologist
Bleeding & Clotting Disorders Institute (BCDI)
United States (US)
Dr. Jonathan C. Roberts
Paediatric and Adult Haematologist
Bleeding & Clotting Disorders Institute (BCDI)
United States (US)
Jonathan C. Roberts, MD is the Associate Medical Director and Associate Research Director at the Bleeding & Clotting Disorders Institute (BCDI) and Assistant Professor of Pediatrics at the University of Illinois College of Medicine at Peoria in Peoria, IL, USA.
Dr. Roberts graduated from the Southern Illinois School of Medicine in 2008 and completed his internship and residency in Pediatrics at the University of Illinois College of Medicine at Peoria at OSF St. Francis Children’s Hospital in 2011. After finishing his residency, Dr. Roberts completed fellowship in Pediatric Hematology/Oncology/Blood & Marrow Transplantation at the Medical College of Wisconsin/Children’s Hospital of Wisconsin in 2014 and worked as a post-doctoral fellow under Dr. Robert Montgomery and Dr. Joan Cox Gill at the BloodCenter of Wisconsin Blood Research Institute.
Dr. Roberts’ research areas of interest are in advancing novel laboratory assay development to improve the diagnosis of von Willebrand Disease and to enhance individualized clinical management of hemophilia. He has received numerous young investigator research awards, has over 40 peer-reviewed research publications and abstracts including lead author publications in Blood and the New England Journal of Medicine, and has had grant funding from the National Hemophilia Foundation, World Federation of Hemophilia, and NIH among others.
Dr. Roberts has a personal passion for the bleeding disorders community as he is also an individual with severe hemophilia A.