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Changing paradigms of haemophilia care across larger specialised treatment centres in Europe

Paper published in Therapeutic Advances in Hematology Paper published in Therapeutic Advances in Hematology

Prof. Jerzy Windyga, Prof. Cedric Hermans, Prof. Niamh O'Connell, Prof. Irena Preloznik Zupan, Prof. Ana Boban

The HEMOSTASIS CONNECT European Collaborative Haemophilia Network (ECHN) Group announces the publication of their paper 'Changing paradigms of hemophilia care across larger specialized treatment centers in the European region' in the journal Therapeutic Advances in Hematology

Prof. Jerzy Windyga

Haematologist

Institute of Hematology and Transfusion Medicine

Poland

Prof. Cedric Hermans

Haematologist

Cliniques Universitaires Saint-Luc, Catholic University of Louvai...

Belgium

Prof. Niamh O’Connell

Haematologist

National Coagulation Centre, St James's Hospital

Republic of Ireland

Prof. Irena Preloznik Zupan

Haematologist

University Medical Centre Ljubliana

Slovenia

Prof. Ana Boban

Haematologist

University Hospital Centre Zagreb

Croatia

Prof. Jerzy Windyga

Haematologist

Institute of Hematology and Transfusion Medicine

Poland

Institute of Haematology and Transfusion Medicine, Warsaw, Poland Jerzy Windyga is the Head of the Department of Disorders of Haemostasis and Internal Medicine in the Institute of Haematology and Transfusion Medicine, Warsaw, Poland. Prof. Windyga obtained his medical degree from Warsaw Medical University. He later received his doctoral degree at the Institute of Haematology and Blood Transfusion in Warsaw, where he also completed his medical specialisations in internal medicine, haematology, and laboratory haematology. He has been a member of the Board of Directors of the WFH (2014-2018) and the Executive Board of the Polish Society of Haematology and Transfusion Medicine (2011-2019). He was the 2012–2016 chair of the Haemophilia Twinning Committee of the WFH. Dr Windyga has also been a member of the EUHANET Steering Committee. In 2013 Dr Windyga was the president of the 6th Congress of the European Association for Haemophilia and Allied Disorders (EAHAD). Since 2003, Professor Windyga has been a member of the Medical Board of the Polish Haemophilia Society, where he advises on recommendations for haemophilia management. In 2019 he has been appointed the Chair of the Advisory Board of the National Program of Haemophilia and Allied Disorders in Poland 2019-2023. He has authored and co-authored over 400 papers published both in Polish and international medical journals. His current research is focused on management of haemophilia and other inherited bleeding disorders, immune thrombocytopenia, thrombotic microangiopathies, porphyria as well as management of venous thromboembolism with a focus on thrombophilia and rare venous thromboses.

Prof. Jerzy Windyga has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

Prof. Irena Preloznik Zupan

Haematologist

University Medical Centre Ljubliana

Slovenia

Dr. Irena Preloznik Zupan completed Internal Medicine and Haematology specialisations and is a dedicated haematologist at the UMC Ljubljana, Slovenia. She is Head of the Outpatient Department, Day Care Hospital and Haemophilia Treatment Centre for adult patients at the Haematology Clinic, UMC Ljubljana, Slovenia. Since 1999, Prof Zupan has been giving regular lectures and tutorials in internal medicine and clinical haematology for Medicine and Pharmacy Faculty students at the UMC Ljubljana, Slovenia and is a mentor for PhD and MSc students. In recent years, she has been working intensively on the development of a day care hospital in the field of haematology. Together with the patient society she started the Slovenian Comprehensive Care Programme for Haemato-oncology Patients with a psychologist, clinical dietitian, physiotherapist, and physician. She is investigating the pathways and programmes that haematology patients need for a better quality of life. She is a member of the EHA, ADVANCE group, MPN&MPNr and is/was PI in many clinical trials. Her main clinical and research activity is focussed on haemostatic disorders, non-malignant haematology and myeloproliferative neoplasms.

Prof. Irena Preloznik Zupan has received financial support/sponsorship for research support, consultation, or speaker fees from the following companies:

time | open 30 min | Apr 2022

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This paper presents the results of a survey carried out by the European Collaborative Haemophilia Network (ECHN) to determine whether the paradigms of care have changed with the introduction of novel therapies for people with haemophilia. The survey was conducted in 19 centres across 17 countries in the European region to:

Track recent changes changes in the haemophilia landscape
Determine the impact of these changes
Anticipate future changes following the advent of novel therapies

HEMOSTASIS CONNECT is an initiative of COR2ED, supported by an Independent Educational Grant from Takeda.

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